KLIK-PROM portal
Recruiting
Who can enter
All children aged 12-21 who receive care or follow-up at the Princess Máxima Center, parents (caregivers) of children aged 0 to 21, and health care providers.
Goal
Goal
The goal of this study is to improve the KLIK-PROM portal and make it accessible to children, adolescents and their parents. We want to know what they like about it and what they think could be improved.
Background
Background
At the Princess Máxima Center, families are invited to participate in KLIK. Through the KLIK-PROM portal (www.hetklikt.nu) we ask children (or their parents) and adolescents to fill in online questionnaires before visiting the outpatient clinic. For example, the questions are about how things are going at school/work, contact with friends, whether they have energy and sleep well. The children or adolescents can answer the questions at home on their computer, tablet or smartphone. The answers will be discussed by the doctor or nurse specialist during an appointment.
We would like to improve the KLIK-PROM portal by hearing from the children, adolescents and their parents what they are satisfied with and what can be improved. We will do this through interviews that can take place online or at the Princess Máxima Center. We will also conduct focus groups with healthcare providers.
In order to participate in a study please refer to your/your child’s doctor.
Last reviewed
Last reviewed
March 23, 2026
Study details
- Study details
Official title
Towards improvement of The KLIK-PROM portal at the Princess Máxima Center: inclusive implementation of oncology-specific reference curvesCancer type
all typesMaximum number of patients
20-40 caregivers and 20-40 children, about 20 healthcare professionals, all in the NetherlandsStart date
March 6, 2024Status
OpenLocal principal investigator
Prof. Dr. Martha GrootenhuisSponsor
Princess Máxima Center for pediatric oncologyApproval
This study has been reviewed and approved by the internal scientific committee (Clinical Research Committee) of the Princess Máxima Center. An accredited medical research ethics committee waived the need for official approval according to the Medical Research Involving Human Subjects Act (WMO), and is therefore not further involved in the review of the research. This is only done for studies with low risk or low patient burden. More information can be found at: CCMO.
The above information is intended as a brief summary only and may not reflect the most up-to-date information. For full details and the current status of a protocol, physicians can contact the Princess Máxima Center directly.