Connection
KinderOncoNet is a national, multidisciplinary care network in which professionals, children and parents/caregivers and survivors can find each other and entrust each other with care so that knowledge and expertise is available close to home at the right time. Connection is the key word for quality and continuity of care. The project will develop a knowledge platform and a care finder. The project also provides training for care professionals.
Questions for help
Parents, children and survivors regularly have questions about exercise, nutrition, sleep, school, work, psychosocial aspects and sports, both during and after the treatment of childhood cancer. These questions should preferably be answered as close to home as possible. KinderOncoNet provides an important basis for this.
Close to home
Because childhood cancer is rare, care professionals outside the Máxima Center don't see children during or after their treatment that often. For these physiotherapists, psychologists, dieticians, teachers, but also rehabilitation doctors and other medical specialists, it is important that in addition to existing professional knowledge from the Máxima Center, targeted training and advice is offered. We are going to facilitate this from a multidisciplinary care network with care providers from the first, second and third line, who are able to find each other and entrust each other with the care. Both during and after treatment, this network close to home plays an essential role.
Project
The KinderOncoNet project inventories the wishes and needs of all target groups and builds this network initially with child physiotherapists and shared care hospitals and rehabilitation institutions. Psychology, and later dietetics, occupational therapy and speech therapy, will also follow.
More information: kinderonconet@prinsesmaximacentrum.nl
Project members
- Judith de Bont, pediatric neurologist
- Jeanine Voorman, pediatric rehabilitation specialist
- Lisethe Meijer, pediatric oncologist
- Femke Aarsen, pediatric neuropsychologist
- Anne van Rooijen, Nurse Specialist
- Alied van der Aa-van Delden, healthcare psychologist
- Willemijn Plieger-van Solkema, on behalf of the Netherlands Association for Childhood Cancer (VKN)
- Lineke Rehorst-Kleinlugtenbelt, pediatric physiotherapist and project leader
- Martin Beuzel, policy officer and project leader
- Annick Vlak, psychologist